International Cerebral Palsy
Genomics Consortium


In March 2017, the International Cerebral Palsy Genomics Consortium (ICPGC) was formed. It is an unincorporated collaboration among entities and individuals pursuing the common mission of accelerating progress in cerebral palsy genomic research. The consortium aims to achieve this goal by advancing a common infrastructure of genomics and clinical data, and harmonising approaches to enable effective and responsible sharing of genomics and health-related data.
Our goal is to work as an integrated, collaborative international network of clinicians, researchers, and advocates in order to unlock the molecular basis of cerebral palsy using genomics and related tools, and to facilitate the development of novel therapies to improve the health and quality of life of individuals with cerebral palsy.

CP Governance

The ICPGC Governance Council manages the overall scientific direction of the ICPGC, its business and affairs including, but not limited to: scientific priorities; strategy regarding funding support; review of new consortium membership; interaction with stakeholders including governments, funders, non-profit and non-governmental organizations, advocacy groups, and others; and all other matters identified from time to time as requiring GC review, including matters arising from periodic ICPGC conference meetings.

Governance Chair

Prof. Jozef Gecz, PhD, FAA, FAAHMS, FFSc(RCPA)
Chair for the Prevention of Childhood Disability; NH&MRC Senior Principal Research Fellow

Affiliations: The Robinson Research Institute, The University of Adelaide; Adelaide Medical School, The University of Adelaide; and South Australian Health and Medical Sciences Institute

Location: Adelaide, Australia

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Governance Members


Prof. Gareth Baynam, MBBS, DCH, FRACP, A/FAIDH, PhD
Medical Director, Rare Care Centre, Perth Children’s Hospital; Medical Lead, rare Disease, Perth Children’s Hospital; Head, Western Australian Register of Developmental Anomalies; Program Director, Undiagnosed Diseases Program WA, Genetic Services of Western Australia.

Affiliations: Western Australian Department of Health – Genetic Services of Western Australia; Western Australian Register of Developmental Anomalies, King Edward Memorial Hospital; Office of Population Health Genomics, Public and Aboriginal Health Division, Perth Children’s Hospital, University of Western Australia, University of Notre Dame Australia, Curtin University, Melbourne University, Telethon Kids Institute.

Location: Perth, Australia

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Prof. Michael Fahey, MBBS (Hons), PhD, FRACP
Director of Neurogenetics; Head of Child Neurology

Affiliations: Monash Paediatrics, Monash University; Monash Children’s Hospital

Location: Melbourne, Australia

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A/Prof. Andres Moreno De Luca, MD
Assistant Professor, Autism & Developmental Medicine Institute and Genomics Medicine Institute; and Associate Neuroradiologist, Department of Radiology, Geisinger 

Affiliations: Autism & Developmental Medicine Institute, Genomic Medicine Institute, Diagnostic Medicine Institute; and Department of Radiology, Geisinger

Location: Lewisburg, PA, USA

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A/Prof. Dr. Uğur Özbek

Director, Institute of Health Sciences; Director, Center for Rare and Undiagnosed Disease (ACURARE); Chair, Department of Medical Genetics, School of Medicine, Acibadem University

Affiliations: Acibadem University

Location: Istanbul, Turkey

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Dr. Charles A Steward, PhD
Head of Patient and Participant Engagement, Genomics England

Affiliations: Genomics England (UK);  Genomics England Participant Panel member (UK); Simons Searchlight Community Advisory Committee member (USA); Hope for Paediatric Epilepsy (HOPE) – London, UK; UK Infantile Spasms Trust (UKIST); Lifetime member of Epilepsy Society

Location: Germany / UK

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Ms. Yana Wilson, MIPH
Research Officer

Affiliations: Cerebral Palsy Alliance Research Institute, University of Sydney; Garvan Institute of Medical Research

Location: Sydney, Australia

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Dr. Richard Wintle, PhD
Assistant Director, The Centre for Applied Genomics; Assistant Director, CP-NET Cerebral Palsy Integrated Discovery Network

Affiliations: The Centre for Applied Genomics and Programme in Genetics and Genome Biology, The Hospital for Sick Children; CP-NET Cerebral Palsy Integrated Discovery Network

Location: Toronto, Canada

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Dr. Changlian Zhu, MD, PhD

Affiliations: University of Gothenburg; Zhengzhou University

Location: Gothenburg, Sweden; Zhengzhou, China

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ICPGC Members


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Cerebral Palsy Alliance Research Institute, Sydney: -33.888200, 151.177000
Monash University, Melbourne: -37.911600, 145.146000
Royal Children’s Hospital / Murdoch Children’s Research Institute, Melbourne: -37.778466, 144.947197
The Children’s Hospital Westmead, Sydney: -33.801028, 150.991577
University of Adelaide: -35.016500, 138.573000
Women’s and Children’s Hospital (SA), Adelaide: -34.912600, 138.599000
Western Australian Register of Developmental Anomalies, Pert: -31.950400, 115.825000
Holland-Bloorview Research Institute, Toronto: 43.718268, -79.374123
The Centre for Applied Genomics, The Hospital for Sick Children, Toronto: 43.657033, -79.388557
McGill University, Montreal: 45.506167, -73.577641
Children\'s Hospital and Institutes of Biomedical Sciences: 31.169200, 121.389307
Zhengzhou University: 34.811753, 113.540615
Israel: 32.085300, 34.781768
Pompeu Fabra University : 41.379200, 2.179390
Universidad Pablo de Olavide: 37.358170, -5.949880
University of Gothenburg: 57.707200, 11.967000
Geisinger Health System: 40.967740, -76.603476
University of Arizona: 33.480400, -112.017000
Yale University: 41.316324, -72.922343
University of Turin: 45.073600, 7.697960
Grand Valley State University: 42.963458, -85.890609
Columbia University: 40.807037, -73.963223
Cincinnati Children\'s Hospital: 39.140296, -84.502180
Harvard University: 42.376871, -71.116047
University of Oulu: 65.056600, 25.467500
Tohoku University School of Medicine: 38.253128, 140.874403
Guangzhou Women and Children’s Hospital: 23.127534, 113.314705
Congenica: 52.200000, 0.116670
Beaumont Hospital, Royal College of Surgeons Ireland: 53.390100, -6.224680
Gothenburg University: 57.698600, 11.973100
University of Queensland: -27.496000, 153.013000
Western Australian Register of Developmental Anomalies: -31.949868, 115.818858
Yale University: 41.317109, -72.922568
Zhengzhou University: 34.759200, 113.652000
Victorian CP Register: -37.814200, 144.963000
University College London: 51.524365, -0.133746
Universidad Pablo de Olavide: 37.388600, -5.995340
Hospital Universitario Austral: -34.458659, -58.863029
Royal Children\'s Hospital: -37.794600, 144.949000