ICPGC Membership

ICPGC Membership

Become a member

Please register your personal details to activate your membership to the International Cerebral Palsy Genomics Consortium. Membership is free.

ICPGC Working Group Activities

Panel App Australia – Cerebral Palsy

A crowdsourcing tool to allow panels to be shared, downloaded, viewed and evaluated by the greater scientific and medical community. All ICPGC are welcome to participate in curating genes associated with CP.

Version 1.36 is available here.

CP ClinGen Gene Curation Expert Panel

This group are reviewing genes associated with CP. All members of the ICPGC are welcome to join, and the group is keen for more biocurators, so please reach out if interested: clingen@clinicalgenome.org. Or head to the CP GCEP Home Page for more information.

Phenotype Working Group

The ICPGC CDEs v1 were completed and published in DMCN, 2021. In our next iteration we need to provide comprehensively definitions, semantic annotations as well as continue the inclusion of other global data standards, in particular with conditions that co-occur with CP.

Bioinformatics Working Group

The ICPGC Bioinformatics groups is currently working on ICPGC exome and genome pipeline standards.

ICPGC Meetings

ICPGC meetings are open to all those interested in CP genetics. These meetings offer researchers and clinicians to discuss their research with others in the field. For 2024, in lieu of a traditional single ICPGC meeting, we have several smaller satellite meetings on offer that are available in person or virtually.  

2024 Meetings

ESHG 2024 (Berlin, Germany – Hybrid format) 

Date: Sunday 2nd June, 2024, 2:15-3:45pm CEST

Workshop: Diagnosing cerebral palsy – who to test and how to manage a clinical vs genetic diagnosis. 

Presenters: Dr Clare van Eyk (Chair), Prof Jozef Gecz (Co-chair), Dr Sid Srivastava, Prof Ingeborg Krägeloh-Mann, and Dr Heather Pierce 

Register here 

AusACPDM 2024 (Cairns, Australia – Hybrid format) 

Date: Thursday 1st August, 9:30am-11:00 AEST

Workshop: Genetic Causal Pathways to Cerebral Palsy: Insights and Implications 

Presenters: Prof Gareth Baynam (Chair), Prof Jozef Gecz (Chair), Dr Clare van Eyk, Mr Dylan Gration, Dr Esther Tantsis, Prof Michael Fahey 

Register here 

AACPDM 2024 (Quebec, Canada – in person only) 

Date: October 26th 2024,

Workshop: Recent Advances in the Genetic Architecture of Cerebral Palsy: What is a Clinician to Do?  

Presenters: Dr Maryam Oskoui, Prof Darcy Fehling, Dr Richard Wintle, Prof Michael Kruer 

Register here  

Past Meetings

ICPGC @ ESHG 2023

There is a pre-conference workshop dedicated to International Genomics at the European Society of Human Genetics. The meeting will be held on Friday 9 June, 2023 (BST: 1:00 – 5:00pm). For more details, click here. To register, click here.

2021 Virtual Meeting

The 2021 virtual ICPGC meeting will be held across two days, in conjunction with the CP-NET Science and Family Day, on October 22nd-23rd. Please click here to register. Click here for the program.

2018 Meeting

The next ICPGC meeting will be held in the Henan Province, China in April 2018, hosted by The Third Affiliated Hospital of Zhengzhou University and Fudan University.

For more information and registration details, please visit: https://icpgc2018.medmeeting.org/en

2022 Virtual Meeting

There is a pre-conference workshop dedicated to International Genomics at the Australasian Academy of Cerebral Palsy and Developmental Medicine and the International Alliance of Academies on Childhood Disabilities.  This virtual meeting will be held on Tuesday 1 March, 2022 (AEDT Time: 8:00am – 12:30pm), with many speakers from the ICPGC.

For more information and registration details, please visit: https://bettertogether2022.org/

2019 Meeting

The next ICPGC meeting will be held in Anaheim, California, USA on the 17th-18th September  2019, hosted by The American Academy of Cerebral Palsy and Developmental Medicine.

For more information and registration details, please visit: https://www.aacpdm.org/meetings/2019/attendee/registration

2017 Meeting

The inaugural ICPGC meeting was held at Umbrae House in Adelaide, South Australia in March 2017. The meeting was hosted by the Australian Collaborative Cerebral Palsy Research Group, under the leadership of Emeritus Professor Alastair MacLennan and Jozef Gecz. The meeting was sponsored by the Cerebral Palsy Alliance and brought together researchers from all over Australia, China, Canada, Sweden, Turkey, Spain and the United States of America to establish a collaborative research network and discuss the development on an online database dedicated to CP genomics.